5p- Society (five p minus) is a parent support group for families having an individual with 5p- Syndrome, also known as Cat Cry Syndrome or Cri du Chat Syndrome. Their mission is to encourage and facilitate communication among familes affected by 5p- Syndrome and to spread awareness and education of the syndrome to these families and their service providers. The Parent to Parent Program connects various families across the country that help provide and share resources with each other and to be able to talk to other families with similar experiences in both English and Spanish. They also offer a newsletter, online Facebook group, and a yearly conference.
Phone: (888) 970-0777 | Address: P.O. Box 268, Lakewood, CA, 90714-0268 | fivepminus.org
Please contact the Statewide Coordinator at 773.205.3627 or 630.207.8479 for more information about resources in your area.
Williams Syndrome Association
The Williams Syndrome Association assists individuals and families with Williams Syndrome. Individuals are able to become members at no cost and are able to get information and a newsletter on happenings in their area. WSA is broken up into different regions where they have available coordinators and advisors who can connect individuals to other families in their community. They also run a Williams Syndrome-specific camp in the summer and have a convention every year.
Phone: (248) 244-2229 | Address: 570 Kirts Boulevard, Suite 223, Troy, MI 48084-4156 | williams-syndrome.org