Medically Fragile Resources
Please contact the Statewide Coordinator at 773.205.3627 or 630.207.8479 for more information about resources in your area.
Cri du Chat Syndrome
5p- Society (five p minus) is a parent support group for families having an individual with 5p- Syndrome, also known as Cat Cry Syndrome or Cri du Chat Syndrome. Their mission is to encourage and facilitate communication among familes affected by 5p- Syndrome and to spread awareness and education of the syndrome to these families and their service providers. The Parent to Parent Program connects various families across the country that help provide and share resources with each other and to be able to talk to other families with similar experiences in both English and Spanish. They also offer a newsletter, online Facebook group, and a yearly conference.
Phone: (888) 970-0777 | Address: P.O. Box 268, Lakewood, CA, 90714-0268 | fivepminus.org